Taking the first step

Why is taking the first step the hardest? The following steps somehow seem easier.

I am writing this because I find myself in the ironic situation of…I was in much better shape Just Start cropin the middle of chemo than I am now. It’s crazy. My motivation for exercise has evaporated. I’m sure it is partly due to the Dutch winter weather and that I no longer have the structured “chemo-cise” program. It is difficult to remember where I was a year ago and realize what I need to recover. Some days it feels almost impossible to get myself up and moving. Almost.

I have been trying to be more disciplined and can feel my fitness level improve (which helps my motivation). But the biggest hurdle I need to overcome every time is just changing into my running gear. Somehow the thought of changing makes me sink deeper into the couch that I am sitting on. Facebook becomes more interesting or I remember that “one thing” I need to look up. It takes a conscious choice to move the computer and take the first step. There are days when my desire and determination win and there are days when it doesn’t. first stepBut I always feel so much better when I run.

These decisions to move aren’t limited to exercise. The first step is the hardest in almost every process. Especially the ones where we can’t see the full path. Are there changes you want to make? Do you want to learn to cook? Are there habits you want to form or break? Does not seeing the the full path keep you from starting? Identify the first step and just start…because without that first step you will always stay where you’ve always been.

Happy Monday!

Lynnea

 

Happy Blogging Anniversary!

I was reminded by WordPress today that on March 1, 2012 I reluctantly started this little blog. It began as a central place to share information but has turned into so much more and opened up a community I didn’t realize existed. Thank you to everyone who has supported and encouraged me. People have accessed my blog from 90 different countries which is crazy…and cool! The connectedness of this world blows my mind.

Cheers to being a blogger! And bring on another year. :-)

Blessings,

Lynnea

Joy in all circumstances? Really?

YES! I can remember the first time I read this passage in college:

“Rejoice in the Lord always. I will say it again: Rejoice! Let your gentleness be evident to all. The Lord is near. Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your heart and mind in Christ Jesus.”

Philippians 4:4-7 NIV – underline emphasis mine :-)

I sat back and thought…Yeah right. There is no way you can honestly have Joy in all circumstances. Some things are just hard! I mean really f-ing hard!! Sometimes there is nothing in you that wants to be joyful or thankful. Why do we, as Christians, need to always force a smile and attempt to have hope and joy. I knew that the author, Paul, was writing these lines in prison and was possibly facing execution…so his life wasn’t so stellar. But still…there was NO WAY you could be authentic and have this be true…always.

Sometimes it is a matter of perspective

Sometimes it is a matter of perspective

Until this year. This year taught me how I had been thinking about this passage wrong for the last decade. I was so focused on the underlined parts…rejoice ALWAYS…be thankful no matter how hard the circumstances ALWAYS…and trying to force myself to feel these things. I missed the fact that I can just come as I am (crushed, frustrated, broken hearted, tears streaming down my face, hopeless) and PRAY and ASK…and it is God GIVING me peace…a peace that doesn’t actually make sense but is real. It is a gift. And that gift then inspires joy and thanksgiving and hope.

What I need to say now is that Joy for me doesn’t equal the feeling of happiness. There were dark days this year when the emotional pain was so intense that I thought it would be easier if the cancer just took me. Waking up every morning was too hard. I was tired of being surrounded by the uncertainties of my health and people I care about dying. I didn’t know how to face the foundations of my marriage being shaken. I didn’t even want to go to the super market because I would have to stretch my exhausted chemo-brain to interact in even the simplest Dutch phrases. I didn’t (and honestly most days still don’t) FEEL happy. I would change a lot about my current situation but in the midst of it all there is a peace and a joy in my core that I can’t explain…and if you look at my circumstances doesn’t make sense. But it truly is what God promised.

I have begun my “re-integration” program at work and it has been great to see my coworkers again and to begin to establish a normal routine. I have had at least 12 people tell me that I’m glowing…not an adjective normally used. :-) I say thank you and know that if it were up to my own strength this year I would have crumbled and given in to despair a while ago. But I am truly thankful to Jesus that I didn’t.

Blessings,

Lynnea

Pink Ribbons Inc.

I got some very sweet responses to my post yesterday about why I wont claim “Breast Cancer Survivor” for myself…thank you for that. :-) I wanted to follow up with a bit more awareness on the Pink Ribbon Culture that surrounds Breast Cancer and swallows the month of October. I am a member of the Zeta Tau Alpha Fraternity and have been around the Susan G Komen foundation and the “Pink Ribbon” for over a decade but I had NO idea what was actually happening. Here is the trailer for the documentary “Pink Ribbons Inc” that does an excellent job of outlining how corporations use my disease as a cause to promote their bottom line. I am not begrudging capitalism but breast cancer is epidemic…we need REAL research into causes and prevention. I know that if women really become aware of how the “research” money is being spent and if we get vocal enough things will change. (Note: If you’re reading this in an e-mail you’ll need to click over to the blog to watch the video)

We do not need more awareness. I don’t need the white house to become a pink house. I don’t need Estee Lauder to sell me some pink lipstick that actually contain carcinogens and then donate a penny to Komen. I would love a nuanced approach to Breast Cancer treatment rather than the current slash, poison and burn. We need to understand this thing!! SOOO much money has been raised with really not much to show for it.

  • 60% of funds raised and donated in North America are being put back into awareness campaigns. Currently only 5% of funds raised and donated in North America are being used towards prevention research. If you’re not AWARE of BC at this point, honestly, you’ve been on the moon…even there you may see the pink lights. :-)
  • Only 20-30% of cancer occurs in women with “known” risk factors and only 5-10% of that is inherited. That’s at least 70% where we have NO CLUE where it comes from and only 5% of the research money going towards it. Tough to cure a disease when we know nothing about it.
  • In the 1940′s 1 in 22 women were diagnosed with BC, now it’s 1 in 8. That may be because of better screening but quite possibly we are polluting our bodies in a way that needs to be understood and stopped.
  • Susan G Komen died 30 years ago…and honestly her prognosis would not be much better now. How have we not made ANY progress in stage IV treatment in 3 decades with all the money raised?

There are a lot more statistics and the problem is one that is endemic of the big pharma system. This is not meant to be a disheartening message. :-) I know people love me and want to help me…honestly buying pink products doesn’t do that…it helps the companies. Signing up for prevention based research organizations like the Army of Women does.

I had debated whether to include the “real” face of breast cancer in this blog because it may be difficult for some people to look at…hell it’s difficult for me to live. But if you really want to see the reality…post surgery…post chemo…post radiation…pre healing/reconstruction click here. But be warned it’s not a pink ribbon. Things NEED to change.

Sorry for the heavy (but important) message on a Friday…have a good weekend. :-)

Blessings,

Lynnea

Things I know

I don’t have much to say right now except a list of a few things I know:

  1. That the hardships this year have transformed me in ways I would not give back. I am at a good place with God.
  2. There has been a divine timing to absolutely everything that has happened. The Lord provided for my needs before I knew I needed them. Whatever the future brings I trust this will continue.
  3. I have been praying for there to be light in the darkness, for satan to be bound and for chains to be broken…I didn’t realize how dangerous this prayer was…the darkness is dark and the chains are thick. But again the Lord has been faithful and will continue to carry me through this. I would pray that prayer again.

Those are my thoughts on this Friday afternoon…off to radiation.

Blessings,

Lynnea

Passing the Baton

Today I officially end my final chemo cycle. Yay! I will take the last pill of my regimen this evening at 8 pm. After that I can empty out my bucket o’ meds and return the unused drugs to my friendly neighborhood pharmacy. Good riddance.

I also had my first consultation with the Radiation oncologist to begin preparing for the next phase of my treatment. I had done my research ahead of time so I was prepared more or less for what to expect from the radiation treatment. Before they begin treatment they use a CT machine to isolate the “radiation field”. The angles of the radiation beams will then be directed so they only hit the field and not the surrounding tissue…obviously this won’t be 100% but they make a considerable effort to focus the treatment. The technicians use 3 tattoos to mark my body so they can position me in the same orientation every day. So yes, my first tattoo is a constellation of 3 alignment dots scattered over my body…I suppose maybe that’s appropriate for an engineer. :-)

I did have a few surprises though:

1. Apparently I have to do 25 doses rather than the 15 I was told earlier. Not a HUGE deal but the difference between 3 and 5 weeks. I will start next week and will be done at the end (rather than the middle) of September.

2. Since I am getting radiated on my left side this hospital uses a technique called “Active Breath Control” to move my chest wall as far away from my heart as possible when the radiation is active. Thanks for that. :-) Basically, they will only turn the radiation machine on when my lungs are full of air and I have to keep the air in my lungs until the dose is done…or hold my breath for 25 seconds or so. What this means for me practically is that my nose is clamped shut and I have to breath in and out through a snorkel so they can monitor the air flow. It’s a little awkward but also not a huge deal. I will just imagine some fish and look at it as excellent practice for the next time we go snorkeling.

Blessings,

Lynnea

My Rock

Yowza…that was some post yesterday. It was an honest and raw account of my week but now I need to add a follow up.  I apparently left folks a little bit hanging and have received quite a few messages making sure everything is OK. And no, honestly, things aren’t OK…but they will be…someday. This little blog is a space to write about how I’m weathering the storms of life and right now there are some pretty fierce winds from many directions. But through God’s strength I will not be blown away.

Today, at my chemo-cise group, I got a chance to chat with another woman I’ve connected with. For the sake of this story we will call her C. We were both friends with, R, the woman who is now facing a much longer/harder road with breast cancer. I was on the exercise bike and C came up and hopped on the one next to me. I asked her how she was doing and she said that she has had a very heavy week. She has been sick, her work is not going well and she feels absolutely surrounded by cancer. Oh sister I feel ya!! C mentioned that it had gotten to be too much and she went to see a counselor. She then pulled a flat, smooth stone out of the pocket of her exercise pants. She said “My counselor gave me this and told me to hold onto it when the thoughts get to be too heavy. I then need to try and think about something else” I asked her what she thinks about, and C said she didn’t know yet. She’s not very good at refocusing her thoughts but it felt good to hold on to the rock. Oh sister I feel that too!!

But my rock is not a stone in my pocket but personal God that I cling to. And good grief…right now I am clinging for dear life…but in the midst of all this he has been faithful. OK, now yesterday’s post is complete. I can weather these crappy weeks by standing on my rock.
Blessings,

Lynnea

With this ring

This was a very happy day

This Thursday July 12th 2012 happens to be the date of my 5th chemo infusion…it also happens to be Jonathan and my 4th wedding anniversary. It’s crazy to sit where we are now and look back on our wedding day. We had no idea what was in store for us…but nobody does. :-) Most of our close friends seemed to be buying houses and building families (and we also wanted those things) so it seemed likely that we would follow the trend. I never anticipated that the next 4 years would consist of: Losing jobs, quitting jobs, moving 3 countries and 2 continents, new jobs, keeping in contact with family and dear friends over thousands of miles, amazing new international friends, and now cancer. We’ve crammed a lot into 4 years and it has most definitely had its highs and lows…but that is the journey we like to call marriage.

I have received some funny reactions when I’ve told people here that I’m married: “But you’re so young!” “Interesting, marriage is so old fashioned.” “Good for you, personally I don’t see the need for marriage.” This is a sweeping generalization but from conversations I’ve had here a theme tends to be that marriage is an institution created by the church and is no longer relevant in relationships. Folks here (generally) believe that choosing to be together is enough they don’t need an outside contract to maintain the relationship…plus a wedding can be freaking expensive. In an era of skyrocketing divorce rates I can see the points they are making. A wedding itself does not equal a lasting commitment.

I can’t judge that perspective but I can say the reasons why we chose to. When we got married, it was important for us to celebrate our commitment to each other in front of God, our family and friends. These are the people who will help us to hold on to our

Our White Sapphire rings…diamonds are not this girl’s best friend :-)

marriage when things get difficult…it wasn’t a commitment taken lightly (to wear a white dress and throw a party) and it has been tested significantly. We had the principles we wanted to build our marriage on engraved into the rings we exchanged. One of Jonathan’s good friends, Rick, created his own symbolic language called water tongue (Click the hyperlink to be taken to the website) Side note: I know at this point you want your own friend who has created a language, it’s OK you can borrow mine. He’s crazy talented :-) …and in this symbolic language we have the following words etched into our rings:

  • Jonathan-commitment-Lynnea
  • Faith-Hope-Love
  • Grace-Heal-Laughter
  • Freedom-Friend-Trust

They have all played a substantial role in our marriage and I wanted to include a sentence about how we are currently experiencing each one:

  • Commitment: choosing the relationship even when life is difficult and unexpected
  • Faith: believing that God is who he says he is and can work miracles
  • Hope: Knowing in our hearts that life wont always be like this…hoping for a better tomorrow
  • Love: As an action where we both make choices to show and extend love to each other and the people around us. Things fall apart when we rely on love as a feeling.
  • Grace: Struggling to fully internalize the grace God has given us and to offer the same grace to each other in ways that we have failed
  • Heal: A very practical one right now…in fully healing my body
  • Laughter: To claim every opportunity we can to laugh and enjoy the blessings in life and not be bogged down by everything heavy right now
  • Freedom: Attempting every day to live in the freedom God has given us and not be consumed with anxiety or fear
  • Friend: Surrounding ourselves with good friends and family…and being a friend to each other
  • Trust: Right now trust and faith are interlinked…we trust also that God is who he says he is and is at work in this situation

Happy Anniversary Amor…4 years down and many more to go.

Lynnea

P.S. but since this is also about a chemo infusion…please continue to pray that the IV goes in on the first time. :-) This has been one of the biggest blessings during this process.

P.P.S. This has been a fun day to look back on and remember.

Right after Mike said…you may now kiss the bride…and Jonathan’s comment was AMEN!

Smile :-)

Dancing the night away…

URGENT Request

Our aunt and uncle came to visit us last night on the tail end of a year long sabbatical last evening. We are very excited to see them but on their journey up my uncle’s computer bag was stolen off the train. The hardware is nothing but I can’t describe how precious and irreplaceable the contents are.

Unfortunately the computer contained the novel he had been pouring his heart into for 10 years…and devastatingly the back up copies. The bag also contained an art book with sketches and thoughts that have been collected through the years.  I can’t tell you how heart breaking this is to lose this work.

We know the thieves got off at Duivendrecht and are probably based somewhere in Amsterdam and will wipe the computer and dump the things they can’t use. My uncle will pay a reward for the return of anything no questions asked- honestly way more than thieves will get for the computer. 

We know this is a long shot but friends in the Netherlands…please forward this post to see if we can recover some of these irreplaceable items. Or if you have any suggestions on where we can look or what we can do. Please reply to this blog or email me at lmpaddock12@gmail.com.

Thank you so much for your help.

Lynnea

Contents:

- The bag was a black heavy canvass computer bag with back pack  and shoulder straps. The bag had a name tag with this information:  

Jack Eastwood, 6 Mullock Street, St. John’s, Newfoundland,  Canada, A1C 2R5 (709) 579-3263

and had a message “reward offered for the return of this bag” at the bottom.

- The computer is an old white Macbook, dropped once, duct taped on the bottom right corner.

As well as the computer inside there was a black LaCie 500GB Hard drive,  two disc holders with CD’s andDVD’s of photos, a novel “The Red Car” and other information and one A4 size sketch book with drawings of artwork and furniture designs. 

 

 

 

 

 

Creative Outlet

 

So far the side effects after the 3rd chemo infusion have been MUCH better than the last round. I even managed to avoid a 24 hour fever that Jonathan picked up. Whew! The main problems continue to be a sore throat/horrible taste in my mouth and mild neuropathy that comes and goes. But no nausea and debilitating fatigue so I’ll take it.

Things continue to be a bit quiet on the blogging front because I am not currently in a place where I’m being extremely introspective. I still read and give myself space to journal. But in general, I’ve been content to just sit and let my body and mind rest. I needed a week where I didn’t have to go anywhere, do anything, talk to anyone, think about anything in particular.  I watched movies when I wanted to and took naps when I needed to it was great. And actually this freedom inspired me to break out my jewelry making stuff and create. Fortunately the neuropathy was never bad enough to prevent me from working with my tools.

I have a 3 drawer chest full of an assortment of beads, wire, clasps, pendants (you get the idea) but it’s difficult for me to be inspired by materials I’ve had for years. However, I’ve given myself the challenge to use up the materials I already have before I can purchase anything new. I needed to impose this challenge because I used to have a bad habit of buying things I liked but never actually used them…any other crafters out there will understand. :-)

But since I don’t have much to say right now I thought I’d show you what I’ve created:

Blessings,

Lynnea